DIRECTOR-GENERAL URGES G-8 TO UPHOLD PRINCIPLE OF
FREE AVAILABILITY OF HUMAN GENOME DATA
Paris, May 9 {No.2000-45} - In a letter to Yoshiro Mori, the Prime Minister of
Japan, who will preside over the G-8 Summit scheduled to be held in Okinawa
in July, UNESCO Director-General Koïchiro Matsuura has requested that the
G-8 issue a statement reasserting the principle of the free availability of
human genome data to the world scientific community for the benefit of all
humanity.
The Director-General reaffirmed today in a statement that he
considers it "both important and urgent that the international community as
a whole should ensure free access to raw fundamental data on the human
genome on the basis of the ethical principles set forth in the Universal
Declaration of the Human Genome and Human Rights adopted by the General
Conference of UNESCO at its 29th session on 11 November 1997 and endorsed by
the United Nations General Assembly by resolution A/RES/53/152 at its 53rd
session in 1998."
Mr Matsuura further stated: "This principle would indeed guide
research and its application while ensuring respect for human dignity and
human rights", adding that this position concurs with that of the
International Bioethics Committee of UNESCO (IBC), chaired by Professor
Ryuichi Ida.
In letters to the President of France, the President of the United
States of America and to the Prime Minister of the United Kingdom, Mr
Matsuura welcomed the concern voiced recently by these leaders, all members
of the G-8, that human genome data should be available to all scientists.
On February 28, during a visit to the Netherlands, President Jacques Chirac
of France publicly expressed his wish that, in order to prevent any risk of
appropriation of the human genome, an ethical framework for the
dissemination and use of the results of genetic research should be
established. On March 14, 2000, US President Bill Clinton and Tony Blair,
Prime Minister of the United Kingdom, issued a joint statement expressing
their conviction that human genome sequence data should be made freely
available to the world scientific community and that discoveries from the
human genome should be used to advance human health.
"These statements uphold the very principles as those set forth in
the Universal Declaration on the Human Genome and Human Rights," Mr Matsuura
said.
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