Human Variome Project

The Human Variome Project (HVP) is an international consortium of scientists and health-care professionals who are working towards a significant reduction in the burden of genetic disease on the world’s populations. The aim of the Human Variome Project is to ensure that all information on genetic variation can be collected, curated, interpreted and shared freely and openly. This will lead to speedier, better and cheaper diagnosis and treatment of genetic disorders, and better insight into the causes, severity and effect of common disease.

The Human Variome Project envisions a world where the availability of, and access to, genetic variation information is not an impediment to diagnosis and treatment. The Human Variome Project is motivated by the knowledge that collaboration across disciplines and cultures will produce better and cheaper results for patients with genetic diseases.

UNESCO’s contribution to HVP

The many challenges faced by the world today call for collaborative action at the regional, intra-regional and international levels. Sharing of resources, information, expertise and state of the art infrastructure by scientists worldwide is crucial today to effectively address common problems facing mankind; the role of industry in capitalizing on the outputs of research and innovation has long term benefits for the countries. UNESCO by working with the Human Variome Project consortium will use its networks of Category 2 Centers in the basic and applied sciences and other partners in the scientific community and industry to promote and strengthen collaboration and foster a more dynamic linkage between the research communities, policy makers and industry.

Sharing Data: Using International Scientific Databases as a Tool in Science and Diplomacy

As an emerging field of inquiry, data diplomacy explores how data-sharing helps create and support positive relationships between states to enable the use of data for societal benefit. Issues that don’t discriminate against the wealth of a nation—such as the treatment of genetic disorders—can employ data-sharing as a starting point for improved international relationships as key stakeholders work together in the search for solutions to problems as relevant in Africa as they are in Asia, Europe, and America.

Session Moderator:
Ernesto Fernandez Polcuch, Chief of Section Science Policy and Partnerships, UNESCO
Session Organizer:
Casimiro Vizzini, UNESCO

Report of the session (pdf)

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