3rd World Sickle Cell Day

© DR
3rd World Sickle Day

19 June has been chosen to celebrate the Sickle Cell Day
Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. It is present on four continents: in sub-Saharan Africa and in the Maghrib, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil,Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). It is estimated that 500.000 are born every year with this severe and invalidating condition and that 50% of them will die before the age of 5 years. Trans-continental, SCD is also trans-ethnic and affects black populations from African origin and Arabic, Indian and Caucasian populations from Southern Europe.

Through advocacy of the Sickle Cell Disease International Organisation (SCDIO), the support of the Republic of Congo and the Republic of Senegal, and the commitment in the scientific world, the African Union (in 2005), the UNESCO (2005), WHO (2006), and the United Nations (2008) recognized sickle cell disease as a public health priority. The 19 of June, has been chosen to celebrate every year the World Sickle Cell Day in order to raise awareness of the disease in the world.

Important frameworks for cooperation and partnership, these recognitions should lead to more concrete actions and are to be supported by strengthened partnerships at national, regional and international levels.

This year the World Sickle Cell Day will be organized on Tuesday 21 June jointly by UNESCO, Congo Assistance Foundation, the Permanent Delegation of Congo to UNESCO and the SCDIO.

The Director General of UNESCO, Mrs Irina Bokova and Mrs Antoinette Sassou Nguesso, First Lady of the Republic of Congo, President of the Congo Assistance Foundation and sponsor of SCDIO will support and be present at the event.

UNESCO had previously hosted in 2002, the First Scientific Conference on Sickle cell Disease, and had and had launched, in 2003, the "International Call for Women Against Sickle Cell Disease", organized by SCDIO.


Details

Type of Event Meeting by Member States or Institutions
Start 21.06.2011 01:00 local time
End 21.06.2011 20:00 local time
Date to be fixed 0
Focal point Toto, Michel
Organizer
Contact Michel Toto
Country France
City Paris
Venue UNESCO Headquarters
Street 9, place de Fontenoy
Room Room XII
Permanent Delegation Contact Permanent Delegation of Congo to UNESCO
Major Programme
Language of Event English, French
Estimated number of participants
Official Website
Link 1 SCDIO Website
Link 2
Link 3
Link 4

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